Monday, October 22, 2012

precious brittin

today was another draining type day...

britt had an appointment with the neurologist to follow up, post seizure/hospital stay.  i think you know the appointment is off to a bad start when she asks "it's been awhile! how are you?"  and when mike and i both look at each other and answer "well, fine except the seizure and hospital stay" and the doctor looked STUNNED.  then she didn't know the prescription dose that SHE JUST PRESCRIBED LAST WEEK!  i supposed i shouldn't expect much... considering i wasn't even listed on brittin's file!  when they asked me to review the patient info, i noticed my ex-husband and mother were on there... mike's phone number was on there... but nowhere was i mentioned at all!  not that i need recognition, but i am kinda THE MOM!

i think there's a chance i'm more upset by this doctor appointment than i originally assessed... 

one of our other MAJOR issues with this doctor is WE CAN'T UNDERSTAND HER!!!  her accent is SO THICK, it's just impossible to understand her!  i leave there so confused. 

and to make the situation more frustrating, the appointment was at 11:30... allowing time to go get britt, drive 30 min to the dr., have the appointment, get blood work, get britt lunch (because we missed lunch at school), drive 30 minutes back, take britt back to school, and finally get back to my office... i spent NEARLY FOUR HOURS on this appointment!  how is that possible!?!

and here's something else that's getting to me... i'm not sure why, after 8 years its bugging me, but here it is:  when people ask "how is she doing?"  i know!!!  they only mean well!!  and i'm not exactly offended... its just my answer...  my answer is always polite and appropriate, but what i WANT to say is "there is NOTHING "WRONG" with brittin.  and her condition(s) will not change!!  TODAY is a ____ day.  but overall, she is how she is"  would i ever actually say that?  NO.  should you be afraid to ask "how brittin is"?  NO!!!  ask me!!  but don't be surprised if i start giving a slightly more accurate answer!

as i picked britt up for school today, we walked out holding hands like usual... and i was pulling her along... like usual... and i was thinking what it would be like if britt was "average"... if she'd never had a stroke... if she had NO medical conditions... and after a split second i stopped thinking about it.  why???  because i can't imagine it...  i love britt EXACTLY the way SHE IS!!! 

britt, yesterday at the pumpkin farm!  so BIG!!

britt and i over the weekend!  wearing her "satchel" of course!

this one is from last year... but i just love it! 


last night, as i watched her WALK to her bed room... i thought "how AMAZING she can walk!!!"  there were times, i didn't know if she would EVER walk unassisted!  i'm so amazed by her!  she doesn't let ANYTHING slow her down!!  and she lives her life with enthusiasm and love for everyone!!!

whew...  thanks for letting me vent!!! 

No comments:

Post a Comment